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Showing posts with label Patients. Show all posts
Showing posts with label Patients. Show all posts

Report: Alzheimer's caregivers number 15 million

SFexaminer, by: The Associated Press 03/14/11

Far more people than previously believed are providing billions of hours of unpaid care for Alzheimer's patients, highlighting the growing impact of a graying population.

Nearly 15 million caregivers — most of them family members but also friends — provide care for people with dementia, says a report being released Tuesday by the Alzheimer's Association.

An estimated 5.4 million Americans have the mind-destroying disease. That it takes so many more people to care for them reflects the burden of an illness that not only robs its sufferers of the ability to do the simplest activities of daily life — but that patients can survive in that increasingly incapacitated state for years, even a decade or two.

"It's too much of a job for any one person," said Dr. William Thies of the Alzheimer's Association. "Even Superman can't do it."

Those caregivers provide 17 billion hours of unpaid care, valued at more than $202 billion. Previously, experts had used a count about a decade ago to estimate that about 10 million caregivers provided 8.5 billion hours of unpaid care for Alzheimer's patients.

Moreover, the time and stress of caring for an Alzheimer's patient takes a physical toll, translating into nearly $8 billion worth of extra health care costs for caregivers, the report says.

There is no known cure, and today's treatments merely help symptoms for a while. While Alzheimer's can strike the middle-aged, it mostly is a disease of older people and thus is expected to skyrocket as the population ages.

Despite all the behind-the-scenes unpaid care, health and nursing home expenditures for dementia patients will reach $183 billion this year, much of it paid by Medicare and Medicaid, the report says.

Alzheimer's Association: http://www.alz.org

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Hospital Guards Allegedly Ditch Mentally Ill Man in Field

Jakarta Globe, Zaky Pawas | February 18, 2011

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Police have questioned four security guards from a Bogor hospital after they allegedly dumped a mentally ill man in a field near the North Bogor Police subprecinct station.

Adj. Comr. Ilot Djuanda of the North Bogor Police confirmed on Thursday that the victim, identified as Angga Nugraha, was now being treated at Marzuki Mahdi psychiatric hospital in Bogor.

Ilot said that when police discovered the victim, they rushed him to a 24-hour clinic, which sent him on to Salak Hospital for further evaluation. Angga needed psychiatric care, so he was then transferred to Marzuki Mahdi Hospital.

“We received a complaint from a resident who I shall only identify as Suratman,” Ilot said. “Suratman told our officers that he saw four security guards from Azra Hospital carrying the man, Angga, and dumping him in a field nearby. So, we checked and yes, we found him.”

Ilot said Angga was discovered curled up in an empty field not far from the North Bogor Police station. He said residents who came across Angga initially feared he was dead because he was so still.

“When police arrived, we found him sleeping and in a very poor condition,” Ilot added. “He was wearing shorts and a white T-shirt. He was walking by the time we got to Salak Hospital, but was limping. The limp looks like it is from an old injury,” he said.

Ilot added that police had questioned the four security guards from Azra Hospital and said they admitted to taking Angga, who was not a patient there, to the field. According to Ilot, the security guards said Angga, a resident of Darmaraja district in Sumedang, West Java, was causing a disturbance in the hospital parking lot.

When Angga wouldn’t leave, the guards decided to carry him to the field, Ilot said, adding that the security guards had suspected he was suffering from mental illness.

“Whatever the reason, what they did was inhumane,” Ilot said. “Why didn’t they just bring him to us at the station?”

North Bogor Police subprecinct chief Comr. R. Lubis said the security guards had just been questioned and no formal charges had been laid.

“We regret their actions,” he said. “Our subprecinct office is so close to the hospital. Why didn’t they call us?”

Meanwhile, Suwignyo, human resources manager at Azra Hospital, denied that the security guards had “dumped” the sick man in the field, saying that they had just “moved” him to another location.

“Our security guards tried to get rid of him, but he refused to leave,” he said. “And then he ended up sleeping near the security guard’s post, so they had to move him. It was just across the road, nobody dumped him.

“The security guards thought he was just a stressed out sick man who lived nearby.”

When asked why the hospital did not contact police about this man, Suwignyo said, “the guards said he looked clean and had clean skin. We did not want to alarm anybody.”

Mentally ill people often fail to receive proper treatment in Indonesia. According to a 2007 Health Ministry survey, 4.6 percent of the population suffers from serious mental disorders, including schizophrenia.

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Country Doctor a Hero to Indonesia's Poor

Jakarta Globe, Candra Malik | December 10, 2010           

Lo Siaw Ging says he is just an ordinary doctor. “There’s nothing special about me,” he said. However, for many people in Solo, Central Java, Lo is a hero — even a living legend.

Seventy-six-year-old Dr. Lo Siaw Ging, who ran Kasih
 Ibu Hospital until 2004, says that he still offers patients
 free treatment out of ‘a love of life, not for  money.’ (JG
Photo/Candra Malik)  
 
Over the past 46 years, he has been treating patients without ever charging them a penny. The general practitioner, who graduated from Airlangga University’s School of Medicine in 1962, spends millions of rupiah per month, out of his own pocket, to provide medicine to his patients. “I do it out of a love for life, not for money,” he said.

Lo, born in Magelang, Central Java, on Aug. 16, 1934, signed up to be a public servant in Solo in 1964. “I assisted Dr. Oen Boen Ing at the Panti Kosala Hospital. He founded the Polyclinic of Tsi Sheng Yuan in 1933, which later became Panti Kosala Hospital and eventually, Dr. Oen Hospital,” Lo said.

Lo found Oen to be a doctor and teacher who he greatly respected. “From my late father, Lo Ban Tjiang, I learned the saying, ‘If you want to trade, do not be a doctor. If you want to be a doctor, do not do any trade.’ From Dr. Oen, I learned to put this message into practice in my daily work,” he said.

For that reason, he never charges his patients nor writes them expensive prescriptions. “I choose to give generic drugs and other medications at affordable prices,” he said.

“Thankfully, there are the anonymous donors who are willing to assist in this humanitarian work. They know me personally and believe in what I do.”

Whenever his patients have problems that need further treatment, Lo provides referral letters that let them get medication at hospitals for free or he contacts other doctors to see if he can get more affordable fees for their treatments.

In 1981, he was made the managing director of Kasih Ibu Hospital, which he developed from a maternity specialist into a general care public hospital.

Lo ran the hospital until 2004, but he still has a small office in the front of the building where he provides free services. ”I never want to retire from this duty. For me, being a doctor is a life calling,” said Lo, who is now 76 years old and still walks upright, although one of his legs was injured in a collision a few years ago.

In his house in Jagalan, Lo also accepts patients from 8 a.m. to 10 a.m. and 4 p.m. to at 8 p.m., every day except Sundays and holidays. However, he never put a sign for his free clinic outside his house. Instead he put it on a wall in front of his office that is not visible from the street.

“Everyone knows that I am a doctor. People know what I’ve done. I no longer need a sign,” he said.

According to Lo, he can do his humanitarian work as a doctor because he was able to get an affordable medical education. “Things were different from how they are now. I never felt I had to pay back my tuition fee by charging patients and writing them expensive prescriptions. Today’s doctors face the demands of the time. They risk their livelihoods by helping patients. I am grateful I did not experience that,” he said.

Oemijati, a former nurse who worked with Lo for many years, said she could still vividly remember how he treated patients while at what was then called Panti Kosala Hospital. “The doctor had a book that listed the names of soldiers that had been given free treatment. The book was very thick. In addition to getting subsidized care from the hospital, Doctor Lo voluntarily cut his salary to help patients afford treatments, including soldiers and the poor,” she said.

Oemijati followed Lo when he moved to Kasih Ibu Hospital and witnessed him continue to perform similar acts of kindness. “As the managing director of the hospital, he was loved by his employees because he fought for our right to get pension money.”

At his free home clinic, Lo has never been supported by an assistant or nurse. In the waiting room in front of the doctor’s office, he does not employ a receptionist.

Sri Winami, a 39-year old resident of Kepatihan village, remembers Lo telling patients, “Whoever comes first, please knock on the door and go straight in to see the doctor. Whoever comes later, please line up in the chairs.”

“That’s the first rule I learned when I was a child and my mother took me to seek treatment there,” she said. “The second rule is, do not try to pay unless you want to get yelled at by the doctor,” she added.

One afternoon in early September, a woman named Sumarni brought her 4-year-old daughter, Rosita Amalia, who was suffering from a fever and cough, to see the doctor. ”If you are not familiar with Doctor Lo’s style, you might find yourself surprised that he is yelling at you. He likes to yell at patients, but it’s just a character he plays. From the bottom of his heart, he is a kind doctor,” she said.

According to Sumarni, Lo is always angry when sick patients avoid getting checked out for too long, and he gets even angrier if they try to pay him. “Lo always says, ‘Do you really have the money? Don’t lie to me!’ when he refuses payment.”

Lo has been called a hero of the poor. He even kept his door open when riots targeting Chinese-Indonesians broke out across the country, including in Solo, back in May 1998. “I am indeed of Chinese descent. However, I have lived in Solo for decades and devoted myself to humanity. Why should I be afraid?” he said, recalling those turbulent days. At the time, his neighbors begged Lo and his wife, Maria Gan May Kwee, to flee or at least stop accepting patients.

“Doctor Lo refused,” said one of his neighbors, Wiwik Haryanti.

Lo has gone on to treat countless patients who might not otherwise have received care. It is no exaggeration to say that he is a hero to thousands of people.

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By the way: How Indonesian, Malaysian doctors treated their patient

The Jakarta Post, Kornelius Purba | Sun, 03/14/2010 9:37 AM

Nine years ago, acting like a holy priest, the doctor tenderly told my wife who was immediately paralyzed after he had operated on her spine, “As a doctor I have done my best, but the decision totally depends on Almighty God.”

We were shocked to realize that she could no longer move her body after the surgery. She walked into the operating theater confidently and left totally powerless.

Until now I still cannot find the right way to confirm the doctor’s claim that it was God’s decision that my wife be paralyzed at the doctor’s hands. As a devout Christian, the doctor did not forget to cite Jesus to support his claims.

To Indonesian doctors, please do not take me to court for sharing my experience with Sunday Post readers. I just want to share the pain. And to this newspaper’s readers, I shared my experience with you in the hope that perhaps you can learn something from it (hopefully such an experience will never happen to any of you).

The doctor suggested I choose the most expensive suite in a famous hospital in Jakarta — where top Indonesian leaders like late former president Abdurrahman “Gus Dur” Wahid were treated — because the best doctors in this city would handle my wife.

My wife fell in the bathroom and broke a bone in her spine. And surgery — by putting the finest rod in her back — according to the doctor, was the only way to safe her life.

She is in a wheelchair now. She often complains that the rod moves and is painful. But all the doctors from various religions that we met assured my wife nothing wrong with the rod and that my wife should stop complaining, because it would only worsen her condition. Several Catholic priests also told my wife that she should surrender herself totally to God and blame her weak faith.

So every time she complains about the pain in her back and her heavy dependence on the wheelchair, I scold her and recited Jesus’ words, ”Do not be afraid.” I do believe her faith is weak, and that nothing is wrong with the rod, because the Indonesian-made rod is of high quality — a guarantee the doctor gave me.

Recently, my wife met a Malaysian doctor. She asked him to help her walk again. I believe Indonesian doctors would immediate offer to perform another operation. But I clearly remember the doctor’s words to her, “I am afraid of sinning if anything goes wrong.”

Perhaps, the doctor is not as devout as the Indonesian doctors, but from the CT scan, he showed us that the rod had moved from its original position, and was causing severe pain to my wife. Should she have another operation to replace it?

“I cannot say what alternative is the best for you. I can only tell you what’s wrong,” the doctor said.

My wife also met a Malaysian internist who concluded she was suffering from severe osteoporosis and suggested a long-term, painful and expensive treatment. He never tried to impose his will. In Indonesia, doctors are always right and never wrong. And even when they are wrong, they are always right.

So my wife’s complaints about the rod and her severe pain for the last nine years are totally right. What should I say to the Indonesian doctors and Catholic priests? Is it true that her suffering is caused by her lack of faith in Jesus?

To be honest, I had always believed that Indonesian doctors were better than Malaysian doctors, although I have no evidence to support the claim. I guest it is because my strong sense of nationalism or bigotry.

In our case, the Indonesian doctor quickly pointed his finger to God for my wife’s misery. The Malaysian doctor said he was afraid of committing a sin and was afraid of damaging his reputation.

The Indonesian doctor did not say such things, perhaps because the doctors are never wrong here.

There is no guarantee at all that the Malaysian doctor will be able to get my wife out of her wheelchair.

But at least she trusts him more.

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